On the one hand, we’ve been busy – organizing and signing prints for the archive – some 500 so far – at the same time as the body is crashing in unprecedented fashion.
I can only just walk as I write this and if it weren’t for my new best friend Susie Bautista, a home health care worker, I’d be much less mobile than I am. My left arm has gone from paralyzed to stiff – it gets in the way a lot. Thanks to the enlarged prostate, much of my time is sent traveling to and from the bathroom. Impaired mobility plus enlarged prostate equals some degree of misery, if I do say so myself.
Susie has cheerfully chipped in and helped the poor, beleaguered spouse with some household chores when she isn’t tending to me. Other bright spots include John, Julie and Grace, who continue their weekly cheer-up mission, to good effect
My stamina is steadily declining and I’m napping more, often twice a day. Sitting up is becoming a chore, And did I mention the sore back? Misery, indeed – and all from side effects rather than the tumor itself . The good news is no seizures, just a little intermittent weirdness with muscle spasms.
The power wheelchair gets me around when I’m up. I’m still dependent on Linda and Susie to get me up and do all the little things like move my (decaf) coffee cup from breakfast table to garage or wherever I’m working..