A pleasant walk starts a busy Sunday

Linda and Cassie on the trailLinda and Cassie and I set off on a walk after breakfast – I walked about 1 3/4 miles before heading back, while my mates continued around Lake Lagunita for perhaps 3.5 miles. Later today, stepson John’s coming down (Fry’s run!), Friend Mary Bartlett’s in town, and there’s a reception after church for the Beatitudes Society.

I’d have loved to make the whole distance, but we’re not quite there yet. I’m weaker now than I was previously, last time the edema was under sufficient control to allow me to walk (I had walked 4 miles of reasonably challenging trails in February).

But, the interim cut-and-try of steroids et al. to manage the edema has left me weaker, even as continued exercise will strengthen the muscles the steroids attack. I can’t walk without the steroids, but they make it harder to build strength.

The edema will eventually recede: the brain it turns out is not well equipped to remove the detritus left over from radiation therapy, and it could take up to a year to reside.

The only way to know if it’s shrinking by itself is to back off the steroids: but that can cause the edema to return (it came back in spades a couple weeks ago when I reduced the steroids). It’s a miserable catch 22 that sees my mobility go up and down.

We’re also currently working with my seizure specialist to re-balance the anti-convulsants in the hopes of improving my mental processing. Like the steroids, balancing these meds is a cut-and-try deal, and we usually experiment on weekends so that unfortunate outcomes don’t wind up happening at work…


About Chris Gulker

Chris Gulker, a self-described Infuential Blogger, lived in Menlo Park, California with spouse Linda. He passed away in late October 2010.
This entry was posted in All, Dawn Community, My Brain, Photos. Bookmark the permalink.

2 Responses to A pleasant walk starts a busy Sunday

  1. Pingback: www.gulker.com » Blog Archive » Lists

  2. Pingback: Saturday morning, on the road

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s