Linda and Cassie and I set off on a walk after breakfast – I walked about 1 3/4 miles before heading back, while my mates continued around Lake Lagunita for perhaps 3.5 miles. Later today, stepson John’s coming down (Fry’s run!), Friend Mary Bartlett’s in town, and there’s a reception after church for the Beatitudes Society.
I’d have loved to make the whole distance, but we’re not quite there yet. I’m weaker now than I was previously, last time the edema was under sufficient control to allow me to walk (I had walked 4 miles of reasonably challenging trails in February).
But, the interim cut-and-try of steroids et al. to manage the edema has left me weaker, even as continued exercise will strengthen the muscles the steroids attack. I can’t walk without the steroids, but they make it harder to build strength.
The edema will eventually recede: the brain it turns out is not well equipped to remove the detritus left over from radiation therapy, and it could take up to a year to reside.
The only way to know if it’s shrinking by itself is to back off the steroids: but that can cause the edema to return (it came back in spades a couple weeks ago when I reduced the steroids). It’s a miserable catch 22 that sees my mobility go up and down.
We’re also currently working with my seizure specialist to re-balance the anti-convulsants in the hopes of improving my mental processing. Like the steroids, balancing these meds is a cut-and-try deal, and we usually experiment on weekends so that unfortunate outcomes don’t wind up happening at work…